Advocacy Makes a Difference

A few months ago, John was on a phone call with a physician who was asking his input about a new drug to help with opioid addiction. At the end of the call, as I walked into the room, John told him about our son’s addiction and death and how we hoped that by speaking openly about him and through our book and blog we could help in some small way. His response was something I will never forget. He said “Don’t underestimate advocacy because it is the surest way to change things. Science and medicine take a long time and have limited effectiveness.”

His comment came to mind in the recent weeks as I watched millions of people around the world protesting against racial prejudice that lay at the heart of police brutality to People of Color (POC). They are advocates of racial equality as a basic human right. I thought: how I wish I could be helpful in a practical way to a problem I have watched change very little over the decades of my life. I felt anger and also frustration, wondering if all the sacrifice and effort would actually bring about real, lasting change.

It is the same feeling I have when I see a young person on the streets, homeless and struggling, enslaved to a substance that is stealing their life. Or anyone living with addiction of any sort. And if I feel discouraged and hopeless, how must they feel? What will help bring real, substantive change and hope in all these circumstances?

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What people are saying about Opiate Nation

As the months have passed since Opiate Nation was released last October, we have received many very encouraging reviews and comments. I have gathered some of them together and created a new page entitled “Recommendations & Reviews.” (see Menu) If you have wondered whether our story is worth the read, especially if you have no personal experience with addiction or heartbreaking loss, then perhaps these reviews will have some insight that will inspire you to order a copy for yourself or a loved one. If you have already read it, we would love to hear from you and know how you have been supported and reassured through our book. It is the reason we have written and published it.

CAN MONEY REALLY COMPENSATE ?

CNN reported this week that Mallinckrodt, a large opioid manufacturer, has reached a settlement agreement in principle worth $1.6 billion with attorneys general for 47 states and US territories. Mallinckrodt announced that the proposed deal will resolve all opioid-related claims against the company and its subsidiaries if it moves forward. Plaintiffs (states) would receive payments over an eight-year period to cover the costs of opioid-addiction treatments and other needs.

Compensation: recompense given for loss injury, or harm suffered. Are the settlements that are being levied against Purdue Pharma, Johnson & Johnson, TEVA, Mallinckrodt, McKesson Corp., Cardinal Health Inc., AmerisourceBergen Corp. really compensation for the millions of lives ruined by opioid addiction? Or for all the lives lost in the past 20 years?

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AIRING DIRTY LAUNDRY?

When I was growing up, this metaphor was commonly espoused: “Don’t air your dirty laundry in public.” That is, you shouldn’t reveal things from your private life that people usually don’t want others to know and they don’t want to hear anyway. Things like inappropriate confessions and unpleasant family secrets. Everyone will be embarrassed and people will feel ashamed.

Now we are more likely to hear someone respond with “TMI – Too much information” when someone goes beyond the bounds of information that no one wants to hear – either too creepy or medical or personal. Totally understandable.

But is it airing dirty laundry for us to speak openly about conditions or situations that are of a communal nature? Topics such as physical or sexual abuse, or complicity and criminal behavior by politicians or leaders, or suicide, or addiction? Of course, there are some details about issues that plague us as a community that do not need to be  part of the public discussion in certain situations. But that is different than bringing an issue into the light of day so that it can be discussed in order to work towards a solution.

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Benefits of Public Dialogue

John and I live in Melbourne, Australia with our daughter and her family several months of the year. Since our son’s death by overdose from heroin 5 years ago, we have become interested in and involved with some of the Alcohol and Other Drug (AOD) programs there. We also receive news reports on current trends etc.

What is interesting to me is the contrast between the Australian approach to AOD use and the American approach. Australians accept that there will be drug and alcohol abuse in their society and therefore speak openly and candidly about it. A recent newsletter (Dec. 13, 2019) from VAADA (Victorian Alcohol and Drug Association) is a perfect example of their approach. It was an alert about “ increasing numbers of reports about very strong heroin in Melbourne, which has resulted in an increase in accidental overdoses.”

The alert asks providers in the AOD sector to alert their clients (heroin users) to this problem and to be careful and look out for their fellow users. They also urge providers to share specific harm reduction information to help reduce the risk of overdose, such as: get naloxone and keep it handy; try not to mix drugs (there is a lot of methamphetamine use mixed with heroin/opioid use); be smart about your tolerance, knowing it can change if you haven’t used for even a few days; and try not to use alone or in an unfamiliar place where you wouldn’t get help if you do overdose (which was the case for our son).

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OPIUM: UBIQUITOUS THEN AND NOW

When I was in Melbourne, Australia recently with our family, I was starkly reminded of the ubiquitous presence of opium in the past as well as the present. Not that I can ever really forget it’s demon-like presence. But when I am asked what I do and I respond that I am a new author, the next question is what my book is about. After I give a short description, I am always surprised at how many people have stories of their own involving this ancient plant – a plant that truly offers humankind a double-edged sword. It can so wondrously relieve pain when our bodies have been injured or undergone surgery. Yet it has a mysterious way of latching on to a large percentage of we mortals who, having once legitimately used this soothing balm, then find the memory of that bliss like an oasis in the desert that we chase after at all cost.

Within a week, I heard three stories. One seems like something out of another era. A 60-yr old man, after hearing about our son and Opiate Nation, began to tell me about his years growing up in Singapore. He explained that both his mother and his father were addicted to opium and would regularly go to the opium dens to smoke. He remembers the intoxicating smell when he would go to find them to use the opportunity of their being in a blissful state to get money from them. He never wanted to use that drug or any other.Melbourne, Australia

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Holidays While In Recovery

I want to pass along a blog from Shatterproof.org that says pretty much everything I try to remember – especially during the holidays – even though I’m not in recovery. The only thing I would add is while starting a new tradition, consider a way to volunteer. If you want to experience joy that no substance can come close to matching, give sacrificially for just a little bit of time. I guarantee you, you will be anxiously awaiting the next opportunity. I am an ambassador with Shatterproof, an amazing non-profit that works tirelessly in the battle to help reduce the addiction rate by means of education, information, and legislation. Check out their website – link below.

9 Tips for Enjoying the Holidays While Maintaining Recovery

By Holly Jespersen, Shatterproof’s Senior Communications Manager

https://www.shatterproof.org/blog/9-tips-enjoying-holidays-while-maintaining-recovery

This is my eighth holiday season in recovery. At this point in my sobriety, I am very comfortable with my new life. I have learned to live without substances, and have a life that is full of loving, supportive relationships. In the beginning, I had assumed that recovery would be boring. I couldn’t have been more wrong. My life these days includes a job that I love and a very packed social calendar full of fun things with people who bring joy to my soul. But it’s not always easy. The holiday season, especially, can be a stressful time for people in recovery like me. Luckily, there are ways to get through it. Here are a few of my top tips for enjoying the holiday season without jeopardizing your health. Continue reading “Holidays While In Recovery”

GLOBAL DRUG SURVEY 2020

The Global Drug Survey (GDS) runs the largest drug – which includes alcohol – survey in the world. The GDS is now it is ninth year and is translated into 16 languages and partners with over 30 countries. Their international team is committed to helping make drug use safer regardless of the legal status of the drug and promoting honest conversations about drug use across the world.

How we wish we had been able to have more open conversations with our son while he was struggling during a relapse or actively using. Had he not feared some punitive measure we could impose on him in an attempt to force him to be squeaky clean, he would have felt less shame and the feeling of being a failure. He could have felt that we were partners with him in his battle against the overwhelming enemy that was within. Continue reading “GLOBAL DRUG SURVEY 2020”

America’s Love Affair with Opioids

Andrew Sullivan’s 2018 article for the NY Magazine entitled “The Poison We Pick”, wrote: “…For millennia, the Opium Poppy has salved pain, suspended grief, and seduced humans with its intimations of the divine. It was a medicine before there was such a thing as medicine. Every attempt to banish it, destroy it, or prohibit it has failed…This nation pioneered modern life. Now epic numbers of Americans are killing themselves with opioids to escape it…According to the best estimates, opioids will kill up to half a million Americans in the next decade.

“Most of the ways we come to terms with this wave of mass death…miss a deeper American story. It is a story of pain and the search for an end to it. It is a story of how the most ancient painkiller known to humanity has emerged to numb the agonies of the world’s most highly evolved liberal democracy. Continue reading “America’s Love Affair with Opioids”

What We Wish We Had Known…

August 2nd was the 5th anniversary of our son, John Leif’s, death by overdose from heroin. As we look back over the years, there is so much information available now than there was for the families of young people addicted to opioids in the early years of this century. So much we wish we had done differently with this son of our hearts – if we had only known.

In the early years of his addiction and recovery programs, we learned how co-dependency and enabling went part and parcel with alcoholism and addiction in family systems. We read all we could about it and worked hard to change from enabling and need-based love to detaching and loving with “tough love.” Sadly, as we now understand, tough love does not work for opioid addiction, because as Dr. Nora Volkow, director of the National Institute on Drug Abuse, says: “The concept of letting children hit bottom with opioids is not the best strategy, because in hitting bottom they may die.” Continue reading “What We Wish We Had Known…”